I lost two patients this week.
I have seen both for some time now. I wrote about one of them in a post in January, and with your indulgence I would like to repost it here as a tribute to him. The other patient I have known for years. Her death was not an altogether unexpected occurrence, but was still a shock.
In psychiatry, we don’t expect to say final goodbyes to too many patients. A friend of mine on Twitter said today that “usually saying goodbye means things are better”. Sometimes, it just means that things are over. Relationships are broken, ended, forcefully terminated without consent. For me, just like for you, it is a painful experience. It reminds me that I should do my best every day, that I should make a difference where I can, when I can. I am not guaranteed another chance.
I want to thank both of these patients publicly for allowing me to be a part of their lives. I want to thank them for trusting me to treat them and help them through bad times. I want to thank them for teaching me and making me a better psychiatrist. In sickness we find hope. In struggle we find resolve. In weakness we find strength we never knew we had. In death, we leave behind the wonderful gift that was our life, magnified a thousand fold through those we touched. Both of these people touched me, and I am a better man for having known them.
Rest in peace. Your struggles are over.
I have seen him on and off for several years. He has had the various problems dealing with issues that many of my outpatients have, with some mild anxiety and depression thrown in from time to time for good measure. He has come in to see a counselor, and he has seen me for medication management. He is like the thousands of other patients I’ve seen over my career thus far. Mostly the same as all the rest, except for one thing.
He is dying.
Psychiatrists don’t usually have to deal with death that much, thank goodness. Oh yes, I would be remiss if I told you I’d never had to deal with it. I have had patients die of physical illnesses that were not related to the reason they were seeing me, sometimes from longstanding maladies and sometimes unexpectedly. I have had patients leave me when they were shot and killed or otherwise murdered by others, even in the medium-sized city I live in. And yes, I have had my share of patients who committed suicide. If you are a practicing psychiatrist and you see patients, you will see some of them die by their own hand. I remember every single one of them. Sometimes their faces or their stories or the way they died pop into my head and my thoughts almost intrusively. Sometimes I feel that long, slow, building wave of guilt about their deaths. Sometimes I realize that what happened to them was tragic but altogether unpredictable, and I learn from it and move on to help the next person sitting in front of me. Yes, in psychiatry we are lucky in that we usually deal with illnesses that might be lifelong but that do not kill their victims, at least not in the acute sense of the word.
This man, however, is dying. He knows it. I know it. It is not an elephant in the room. We talk about it. He volunteers sometimes. I probe at other times. He shares. I listen. He teaches. I learn. He has pretty much maxed out his therapies. His body has absorbed all the poison and the rads that it can. His doctors have told him what to think about, and how to prepare. He has resigned himself to the fact that this illness is what is going to end his life. He is still fully engaged, although some days in slow motion, in his life and the lives of his family. He still wants to see me. I still want to see him.
At the end of our last visit, something very strange happened to me. We were talking and wrapping things up, and the natural course of things lead me to ask him about his need for a new prescription for his medication and a new appointment time to see me. He hesitated just the least little bit (or did he?) before answering me. Something in my brain commented very softly, but loudly enough to bother me tremendously.
Do you think he’ll live until his next appointment with you?
How many refills will you put on his prescription?
I suddenly felt a little panicky, very unnaturally so. Of course I did not show this outwardly, but inside my gut tightened and I was a little light-headed and I felt a little nauseous. It was almost, for a crazy, wild, awful, weird, unnatural moment, as if I could influence the future, his future, by deciding how many refills I would put on his prescription or how far out into the future I decided to schedule his follow-up visit with me.
It’s hard to say goodbye to those we love, to those we care about, to those we enjoy talking to. It’s hard to lose emotional connections that have been forged over months or even years. It’s hard to move on when death comes. Spouses have to do it. Children have to do it. Parents have to do it. Psychiatrists have to do it.
I have learned a lot from my patient about impending death. I have learned about the absolute necessity of maintaining a positive attitude, about staying fully engaged with children and grandchildren and about the importance of calm and serenity. I have learned about giving in without giving up. I have learned about making good choices based on science, emotions, reality and practicality. I have learned about seeing life as it is, not as we wish it could be.
The fleeting moment of panic left me as quickly as it had come. I wrote out the prescription for my patient, told him when I would like to see him again, stood up, shook his hand, and walked with him to the door and out into the hallway. He smiled. I smiled.
“I’ll see you soon,” he said, as he turned and stiffly walked toward the exit.
“Yep, I’ll see you soon,” I replied.
The number of refills on the prescription? Well, I can tell you that for patients I know and have been seeing for a while, I usually put five.
I’ll let you guess what I did that day.
Post script:
As many of you have already guessed, I gave him five refills that day in January. I knew he would not live to see me again in June. He knew it too. Neither one of us spoke that thought aloud.
Reality is what it is, but hope springs eternal, does it not?
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